Boy, so much has happened in the past month. I didn’t even realize how long it had been since I updated! Sorry. We had a fabulous Christmas! We did not get to go to Maine to see my mom but we had a nice quiet Christmas at home. I needed the rest and relaxation so much.
My Oncology appt. was on 12/28 and after much discussion, it was decided that my best hope was to go through the year-long Interferon Alfa-2b treatment regimen. I begin on Monday, January 10th. This weekend will be spent enjoying the last moments of nursing Bubba and stocking the cabinets with everything I need to help with side effects.
Bubba has been doing very well with the transition to milk. I ended up going with regular Whole Cow’s milk because it would be easier for Hubby…he wouldnt’ have to go to a speciality store looking for coconut milk. He will be the primary caregiver for the first 20 days of my treatment so I want to relieve whatever stress I can for him. I am so happy that we made it to 14 months with breastfeeding but I am sad that it is coming to an end just now when Bubba is actually beginning to ask to nurse. He’ll come over, tap my shirt then rub his belly (his attempt at Please in sign language) and say, “Ba ba?” It’s so sweet!! I hope the adjustment will be easy for him.
We finally had the “talk” with Buggy, my 7 year old. We again, avoided the word cancer and decided to go with skin disease. We did, however, decide that if he asked us if it is cancer then we would tell him. At first he seemed upset but we explained that right now there are no signs of the disease being present and that treatment is being done in hopes of making sure it never comes back. He handled it pretty well and promised that if he had questions, he would ask. He also asked if he would be able to come to one of my treatments. We told him he could come to Boston with us but would not be able to sit in on treatment. He and Dada will go for a treat instead…much more fun!
So, I think I have caught up with everything! I am finishing up work tomorrow and tying up as many loose ends as I can since I will not be able to work for the first 20 days of treatment. The first 20 days I will drive up to Boston every day, 5 days a week for IV infusion. Once the 20 infusions are done, I will then begin Maintenance and will give myself injections at home 3 times a week for the next 11 months. Right now, I am just focusing on getting through the 20 days without too much effect on myself and my family. We’ll deal with the next part when that time arrives which will hopefully be Feb. 7th.
I am feeling good, positive and ready to begin! Let’s hope I can keep my energy up through the first part of treatment.