Mothering Thru Melanoma

My walk through the scary world of cancer while caring for my family.

Within 2 months, it’s in my brain! May 18, 2013

Filed under: Uncategorized — mamabeaumo @ 7:06 pm
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I had an unremarkable brain…until 2 months later when it had over 20+ spots of melanoma. My IL-2 was cancelled and radiation and Yervoy became the new “to do”. I have 2 more whole brain radiation episodes left and can’t wait to get off the steroids!! My 2nd round of IPI is on Tuesday with those finishing off in July. Here’s hoping.

At this point, my hair is just about out and I am done looking “sick”! I preferred the tiredness of the interferon but still feeling like me. I hate people staring at me!

Tomorrow we have our Glenna Kohl Piggy Trot and I am psyched!!

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And the monster returns with a vegence! April 11, 2013

Filed under: Uncategorized — mamabeaumo @ 11:24 am
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Well, my one year post-Interferon PET did not yield the positive results we were hoping for.  My melanoma has now spread to my lungs.  Stage IV!  Wow!  How incredibly unbelievable to hear those words out loud.

I am recovering from a wedge resection on my right lobe and prepping to begin Interleukin-2 in May.  The next few weeks will be spent with my boys having fun and making memories.  I am going to try to chronicle my journey with IL-2 but who knows what sort of condition I will be in.  I will do my best!

 

More fun! March 13, 2012

Filed under: Uncategorized — mamabeaumo @ 8:31 am
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I have been fighting a cold since this weekend. It seems it either came from Buggy or has jumped to him. We are home today with swollen tonsils. I figured my immune system would have worked itself out by now but I guess it’s gonna take a bit longer.

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Feeling more like myself! March 12, 2012

Filed under: Uncategorized — mamabeaumo @ 2:57 pm

I have been off treatment since January 10th and although my immune system went completely wonky for a while, I am feeling more like myself!

Strange little after effects…cold, sinus infection, strange red swollen spot that doctor had no idea about, swollen right nostril, etc. I have written them all off to the Interferon leaving my system. Whether that is correct or not, we’ll see.  I have my first 3 month check-up next week and I am both excited and scared.  After discussing it with my oncologist, we decided that I would not get scans every 3-6 months.  We will most likely do every year and then hopefully progress to every 3 years and so on.  I am happy about this as it limits my exposure to radiation but it also terrifies me!  What if we miss something and it becomes “too late”?

I have discovered over the past couple of months that this is basically something I will live with for the rest of my life.  I will always question a strange spot that suddenly appears, a knot that doesn’t seem to go away quick enough for my liking, a headache that never ends.  As much as I stay positive there are moments when it does get scary.  People don’t seem to understand that.

As I said to my husband, people really don’t want to know the truth when they ask you how you’re doing.  They want you to tell them that things are great.  That way they don’t feel bad and then you don’t have to feel bad for making them feel bad! And I understand that but I shouldn’t have to protect your feelings!  I’m the one with cancer!!

Buggy is definitely noticing the difference.  I think he likes that I am more active but isn’t enjoying the adjustment to my not taking the Celexa (“happy pills”) anymore.  He blames it on the lack of “happy pills” when he is being reprimanded for something he shouldn’t be doing.  LOL  I am completely off any medications that I had been given from the beginning.  I had been on stuff to help with the upset stomach, stuff to keep my moods in check, stuff to help me sleep and stuff to keep me calm when in and out of MRIs and CT Scans.  I am proud to say it’s all gone now!  A glass of wine never tasted as good as the one I had on January 14th!!  That was more than enough mood enhancement for me.

I am looking forward to the arrival of spring and participating in the Glenna Kohl Fund for Hope 5k in May. I was hoping to actually be able to run it but I am happy just to be able to walk it!

 

I am sooooo not a blogger! January 26, 2012

Filed under: Uncategorized — mamabeaumo @ 12:31 pm

I can’t believe it has been so long since my last post.  So much has happened!

I stopped treatment on January 6th and am feeling more like myself every day.  My energy is returning and I am getting back to my usual routines.

Bubba has turned 2 and is definitely finding his own voice.  He certainly lets us know what he likes or dislikes!

Buggy is a thriving second grader who has taken on my love for books.  He has a Kindle now so his books can travel with him.  It a wonderful thing to witness.

Hubby has been promoted at work and we are all extremely proud.  He has been my rock! Not only thru the ups and downs of treatment but follow-up excisions, removal of bandages, stitches, etc.  I would not have been able to get thru this without him.

 

Summer is over! August 26, 2011

Filed under: Uncategorized — mamabeaumo @ 10:36 am

And I am exhausted!  I am happy to be back to work so I can get some rest.  LOL

School starts on Wednesday and Bubba has returned to school 5 days a week.  We had a fabulous but very tiring summer.  There was so much I wanted to do with the boys but not a lot of it got done.  Besides the normal side effects of treatment, I managed to pick up a couple of stomach bugs…yeah, me!!  My blood counts are still off so I easily pick up bugs from the boys or others.  I hope it can recover before winter hits.

Bubba has been potty training himself for the past couple of months.  I am so impressed given he’s only 20 months old and totally self-driven.

Buggy has been reading up a storm this summer when he’s not at camp.  I am so proud of him!!  And I love the fact that he is actually looking at reading as an enjoyable thing, rather than work.

We have been trying to eat healthier these days.  We have made and canned 8 jars of wonderful Garlic-Basil Tomato Sauce made from tomatoes purchased at the local Farmer’s Market.  Buggy and I made a huge batch of homemade granola that is divine!  My attempt at making homemade yogurt failed but I shall preserve!

This weekend, we will ride out Hurricane Irene and hopefully keep our electricity so we can make and jar our Strawberry Jam!!

 

What a week! July 17, 2011

Filed under: Uncategorized — mamabeaumo @ 7:37 pm
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Bubba was sick all week with a really nasty cold and a fever that wouldn’t break. He was waking up every 20/30 mins every night so sleep was not good for either of us. Fortunately, he is doing much better. Still congested but doing well.

I had the beginnings of a UTI which has gone from uncomfie to downright painful. I am trying to hold on til Tuesday when I have my monthly oncology visit. I had no clue that when you have melanoma, UTI’s can be a sign of a spread if normal treatment does not work. Really hoping that it’s just because the interferon is messing with my immune system and not a spread. Tuesday can’t come soon enough.

Other than that, we’ve had a pretty good start to the summer. Lots of fun…camp and keyboard club for Buggy and school two days a week for Bubba just to keep the routine. Bubba is now sleeping in a big boy bed and occasionally using the potty! He’s getting so big! Excited to see whatthe rest of the summer has in store.